Breathing Space communities function as ‘closed groups.’ This means that in order to join a specific online community, a person will need to share common issues, experiences, or concerns with the people in that group. This will allow members to connect and socialise with others who are experiencing similar or related challenges or concerns, while being supported by clinicians. This sort of community offers greater privacy and confidentiality than an ‘open’ network.
To register, you will need to meet the eligibility criteria of the group. The Mark Hughes Foundation Breathing Space group is for Australian adults, aged 18 years or over, who are supporting an adult loved one with Brain Cancer.
Register your participation in the network here. We will include you in the online community that is most relevant to your experiences.
Code of Conduct
You will have free online access to Breathing Space 7 days a week, 24 hours per day. Before you register with the network, it is important that you familiarise yourself with the group guidelines (see below). These guidelines are focused on making sure that the community is a safe and helpful place for you to share and receive information with others, give and receive support and encouragement, which help to ensure that the community operates as it should.
To get the most out of the community, everyone needs to understand and follow the group guidelines to make it a safe and helpful place for everyone. By joining Breathing Space, you agree:
- To be authentic and honest in your interactions with other peers in the community;
- To ‘own what you post’ in regard to the content or comments that you make in the community forum. Although you have the right to maintain anonymity, remember to not post content (i.e. comments) that you would not be prepared to say in person;
- To treat people well and with respect. Don’t engage in negative comments, as Breathing Space will not tolerate posts that are offensive, inciting, threatening, insulting, or encouraging of negative behaviour and
- To not post copyrighted content or material such as posts that advertise products or businesses.
You are solely responsible for any content or material that you post or upload on the Mark Hughes Foundation Breathing Space community forum, or that is posted by another person using your username or password. Breathing Space and UoN excludes all liability (to the extent permitted by law) for any loss, damage, or expenses suffered by you or claims made against you arising from content or material which you post or upload, or which is posted by another person (whether using your username or password or otherwise).
Please remember that the forum is a virtual space to connect with, and seek support from, other people with lived experience of supporting a loved one with a diagnosis of brain cancer. While there will be regular monitoring of the posted content and some input by Psychologists and Social Workers (Moderators) it is not a counselling or individual support service. The Moderator will be able to provide you with some assistance by directing you to other services, but they cannot be your personal therapist.
Acknowledgement and Acceptance of Terms and Use
Is my Information Private?
UoN has an obligation to ensure your privacy and confidentiality when accessing the Breathing Space community. Your information will be completely confidential and any personal details, which may identify you, will not be passed on to third parties. Please be aware that the UoN and Breathing Space will not disclose or use content that you post to the network, except:
- in the use of website analytics to monitor the volume of traffic on the network;
- if the law requires or authorises the use or disclosure of content that you post;
- if disclosure is reasonably necessary to enable an enforcement body (i.e. police) to perform its function.
Disclaimer and Limitation of Liability
Breathing Space is provided on an “as is” and “as available” basis. UoN and Breathing Space make no representations or warranties of any kind, express or implied, as to the information, content or material included on the community forum. By engaging and using the app, you are expressly agreeing that your use of Breathing Space is solely at your own risk. You should always seek the advice of a physician or other qualified health or mental health provider with any questions you have regarding a medical or mental health condition. You should never disregard professional medical or mental health advice or delay in seeking it because of a result provided by anything you read on Breathing Space community forum.
Access to an ownership of Breathing Space
The Content in Breathing Space is protected by copyright, trademark and other intellectual property laws and the rights of UoN and/or their third-party licensors. You obtain no interest in the Breathing Space Content.
You are granted the right to view Breathing Space Content using your web browser and mobile phone for your own personal use.
Quality of Information
Any errors in the content that are brought to our attention will be corrected as soon as possible. UoN reserve the right to change any content on Breathing Space at any time without notice.